The Search for the Legacy of the USPHS Syphilis Study at Tuskegee

Reflective Essays Based upon Findings from the Tuskegee Legacy Project

Contributions by M Joycelyn Elders, Rueben C. Warren, Vivian W. Pinn, James H. Jones, Susan M. Reverby McLean Professor in the H, David Satcher, Mary E. Northridge, Ronald Braithwaite, Mario DeLaRosa, Luther S. Williams, Monique M. Willams, Vickie M. Mays, Malika Roman Isler, R L'Heureux Lewis, Harold L. Aubrey, Riggins R. Earl The Interdenominational T, Virginia M. Brennan Edited by Ralph V. Katz, Rueben Warren

Publication date:

27 July 2011

Length of book:

208 pages

Publisher

Lexington Books

Dimensions:

240x164mm
6x9"

ISBN-13: 9780739147252

The Search for the Legacy of the USPHS Syphilis Study at Tuskegee is a collection of essays that seeks to redefine the "legacy" of the infamous Tuskegee Syphilis Study in light of recent findings from other scientific studies that challenge the long-standing, widely-held understanding of the study. These essays are written with thoughtful attention to fully integrate the essayists' perspectives on the impact of the study on the lives of Americans today and place the legacy of the study within the evolving picture of racial and ethnic relations in the United States. Each essayist looks through his or her own personal and professional prism to give an account of what constitutes that legacy today. Contributors include the two leading historians of the Tuskeegee Syphilis Study and two former Surgeons General of the United States as well as other prominent scholars from the fields of public health, bioethics, psychology, biostatistics, medicine, dentistry, journalism, medical sociology, medical anthropology, and health disparities research.

Chapter 1 Preface
Chapter 2 Foreword
Chapter 3 Information Stream of the 'Legacy' of the USPHS Syphilis Study at Tuskegee: 1972-2010
Chapter 4 From Exlusion to Inclusion: Participation in Biomedical Research and the Legacy of the U.S. Public Health Syphilis Study at Tuskegee
Chapter 5 Of Thanks and Forgiveness
Chapter 6 The "Tuskegee" Syphilis Study as a "Site of Memory"
Chapter 7 Tuskegee Legacy: The Role of the Social Determinants of Health
Chapter 8 Toward the Ethical Conduct of Science and a Socially Just World
Chapter 9 The Southern Male Placebo Study: the good, the bad and the ugly
Chapter 10 Intent: the Key that Unlocks the Search for the Legacy of the USPHS Syphilis Study at Tuskegee
Chapter 11 The Untold Story of the Legacy of the Tuskegee Study of Untreated Syphilis in the Negro Male...Or, Is the Legacy of Tuskegee Affirmative Action for White Researchers?
Chapter 12 Legacy of Tuskegee
Chapter 13 Racial Conspiracy and Research
Chapter 14 African Americans and the Broader Legacy of Experience with the American Health Care Community: Parasites, Locusts and Scavengers
Chapter 15 The USPHS Syphilis Study at Tuskegee: Rethinking the Horizons of Beneficence
Chapter 16 Medicine, Research, and Socio-cultural History: Reciprocal Relationships
Chapter 17 Healing the Sin Sick Soul: Reflections on the Syphilis Study
Chapter 18 Appendix A. List of 7 Key Tuskegee Legacy Project articles
Chapter 19 Appendix B. Biosketches of Contributors

This collection of essays looks at the historical and bioethical issues stemming from the USPHS Syphilis Study at Tuskegee, especially the legacy generated by the 40-year abuse of African American subjects in the study. In the excellent Examining Tuskegee (CH, May'10, 47-5055), Susan Reverby discussed how the long-held assumptions of the legacy have proven problematic. Here, contributors examine the evidence for two assumptions of the legacy: African Americans are less willing than whites to participate in biomedical research studies, and relative willingness to participate is associated with an awareness of the USPHS study at Tuskegee. The conclusion of the editors is that neither assumption is supported by the evidence of numerous studies of the past decade. That is just the beginning, however; the 14 essays that make up the body of the book deal, often in personal ways, with the variety of legacies that exist in the troubled landscape of racial relations, biomedicine, and the cultural realities of American life. The Tuskegee experience remains relevant and rightfully disturbing in so many ways, even if the assumptions of the original legacy have faded. Summing Up: Recommended. Academic and professional readers, all levels.